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Old 08-29-2009, 02:36 AM   #1
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Joined: Oct 2008
From: north las vegas
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I Ride: kawasaki ninja 650r 2008 lots of mods
well just found out that i have a diseasecalled ADDISON'S disease witch
causes my adrenal gland to stop working. now i have to take meds for the rest of my life witch sucks i hate to take pills and i also have to take testosterone gel for the rest of my life as well is going to on with me i am living in hell and the devil is holding my hand saying come with me. i need help i hope that the doctor is worng and this is just tempary thing but i don't think so ooh god help
 
 
Old 08-29-2009, 06:19 AM   #2
bes
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From: NorthWest Vegas
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I Ride: 2008 FJR 1983 CB1100F
Sorry for you challenge. I have a good friend that has Addison's as well. He is one of the most fit people I know. Rides his ass off on MotoX tracks, and plays Lacrosse. He is 40+ and has been dealing with this for 20+ years. Stay Strong, Barry
 
 
Old 08-29-2009, 06:36 AM   #3
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From: north carolina
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I Ride: 2006 cbr 600rr
sorry to hear that, jason.
 
 
Old 08-29-2009, 09:04 AM   #4
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Posts: 167
Hey Dude, I have that too. My doc calls it "Adrenal Failure/Adrenal Fatigue" but it's the same as Addison's. It hits us all in varying degrees, but my doc worked with me so that I only need to take supplements, not prescription drugs... she weaned me off the "hard stuff" once we got everything back in check. Now I go in a couple times a year for monitoring.

The two most important things with this disease is regularly scheduled sleep and meals. If you are late on a meal or lose too much sleep over too much time, you will BE THE DEVIL!! Keep those two things going and maybe your doc can get you off the meds and onto supportive care. If you want the name of my doc, I'd be happy to give it to you... she's REALLY great!!

Anyway, sorry to hear, welcome to the club and... keep in mind if you take care of yourself and do what I said above, you can be sane and live a really full life...
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"At that moment, when you accept the fact that there is no fixed reality, no hard and fast set of rules that need to be followed, no limits or borders, you are making the choice to be free" --Garri Garripoli
 
 
Old 08-29-2009, 09:36 AM   #5
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Joined: Apr 2008
From: Las Vegas
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I Ride: 99 Black Bird CBR1100XX
Good looking out Karen! I wish nothing but the best for both of you! Keep your head up Jason, my dad always said you can't let "it" beat you or even think it is gaining ground.
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Old 08-29-2009, 09:55 AM   #6
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From: Las Vegas/Summerlin
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I Ride: 2005 Suzuki Hayabusa LE/2007 Suzuki GSXR600/2000 Honda CBR600F4
Sorry to hear about this, Jason. It sounds as if you have a tough road ahread of you, but I know you can do what's needed to keep this condition in check.
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Old 08-29-2009, 02:25 PM   #7
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Joined: Jun 2009
From: near Aliante
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I Ride: VFR 800 5th Gen, Ninja 250 3rd Gen
Make sure you se an Endocrinologist about this if you haven't already.
They are the specialist for this.
 
 
Old 08-29-2009, 02:30 PM   #8
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From: N. Las Vegas
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Sorry to hear about that Jason. It definitely doesn't sound fun taking all those pills.
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Old 08-29-2009, 03:50 PM   #9
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Joined: Jul 2005
From: Las Vegas
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It sucks at the prospect of having to take pills for the rest of your life. The reality is, if it works, having to takes pills everyday is not that hard. I take a handful of supliments everyday. I have since me teens. You just get used to it.

The most important thing is that you get better and feel better.
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Old 08-30-2009, 11:14 PM   #10
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Joined: Jan 2009
From: Cheyenne & Decatur
Posts: 169

I Ride: 2005 Yahmaha FZ6
Quote:
Originally Posted by Stoppie View Post
Make sure you se an Endocrinologist about this if you haven't already.
They are the specialist for this.
Yea he does see an "Endo" i went with him when he found out it sucks but i know he'll be just fine We can do this dad
 
 
Old 08-31-2009, 07:26 AM   #11
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Joined: Sep 2008
From: 92H8
Posts: 1,385
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I Ride: a turbocharged vacuum... i upgraded my broom...
Quote:
Originally Posted by VFRChick View Post
welcome to the club and...
yer silly, hes a member... hehehe

and jason, dont worry, just be taking care of yourself...
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Old 08-31-2009, 07:49 AM   #12
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Joined: May 2009
From: North Las Vegas
Posts: 590

I Ride: R6
So sorry to hear you have addison's. They say it's a rare condition, and it took years before my sister-in-law was diagnosed with it (20 years ago). She nearly died from being so emaciated bc she couldn't keep her food down. But she lives a normal life and takes pills every day, and last year she had her first healthy baby at 36 years old. The upside is that her complexion darkened a bit, so she looks like she has a perfect tan all the time.

It is a hard thing to deal with anything like this, but hopefully you have friends and family there to support you. I know everyone here is wishing you the best.
 
 
Old 09-01-2009, 08:51 AM   #13
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Joined: Oct 2008
From: north las vegas
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I Ride: kawasaki ninja 650r 2008 lots of mods
thanks for the support everyone and i will see u all tonite at tonys pizza love PIZZA
 
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